Huntington's Disease Society of America MICHIGAN CHAPTER  Chapter (517) 646-0920 Fax (517) 646-0885  Help Line 1-800-909-0073

FAMILY SERVICES COORDINATOR

The Chapter Family Services Coordinator is available for consultation by telephone, and for limited family/home visits. At times, individuals and families meet with the Family Services Coordinator in the Chapter office in Lansing, or privately before support group meetings around Michigan.

The expertise the Family Services Coordinator (FSC) has with “systems” and the dynamics within the family of someone affected by Huntington’s Disease are of help when people do not know “what to do next”. The FSC is often involved at times of diagnosis, and at times a change in living situation is needed.

These are ways our Chapter Family Services Coordinator can help you and your family:

• Provide an "in-service" for caregivers in adult foster care or nursing home settings.
  
  
• Advocate to get a person into appropriate services
  
  
• Help locate an experienced doctor
  
  
• Help the family as a group cope with HD
  
  
• Help find local resources for respite, placement, or in-home help
  
  
• Listen on the Chapter Help line
  
  
• Provide information and guidance for caregivers, helping to prevent “burnout”
  
  
• Help connect family with resources throughout the state  and in other parts of the country
  
  
• Lead and provide ideas for speakers and support Groups.
  
  
• Coordinate communications between health care providers and the family.

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